Advancing the Health of Families
MotherToBaby establishes partnerships with organizations that share our interest in the health of families. We can also refer you to a number of other resources that can provide helpful information about pregnancy, birth defects, and exposures during pregnancy and breastfeeding.
Allergy & Asthma Network
Allergy & Asthma Network is a national patient education and advocacy nonprofit dedicated to ending needless death and suffering due to asthma, allergies and related conditions through outreach, education, advocacy and research.
American Academy of Allergy, Asthma & Immunology
The American Academy of Allergy, Asthma & Immunology (AAAAI) is a professional organization with more than 7,000 members in the United States, Canada and 72 other countries. This membership includes allergist / immunologists, other medical specialists, allied health and related healthcare professionals—all with a special interest in the research and treatment of allergic and immunologic diseases. The AAAAI is dedicated to the advancement of the knowledge and practice of allergy, asthma and immunology for optimal patient care.
CreakyJoints, part of the nonprofit Global Healthy Living Foundation, was founded in 1999 as an online support community for people living arthritis. Since then CreakyJoints has grown to a community of over 90,000 by providing meaningful support, education, innovative advocacy and global research projects.
FASD United, established in 1990 as the National Organization on Fetal Alcohol Syndrome (NOFAS), works to help families connect with each other, find FASD-informed resources and services, and rally lawmakers to raise public attention for the cause. FASD United has developed many programs that have contributed to important progress. Now the challenge is to fulfill the promise of prevention and meet the needs of the children, adults, and families living with FASD.
Foundation of the National Lipid Association
The Foundation of the National Lipid Association (NLA) is a patient-focused nonprofit organization dedicated to improving the welfare of patients and families affected by cholesterol and triglyceride problems. Their values are education, awareness, and advocacy.
MyHealthTeams creates free social networks for chronic condition communities. People diagnosed with a chronic health condition can get perspective from other informed patient-peers as well as medically reviewed resources that help them manage their health. See the current and growing list of social networks that MyHealthTeams has created here. These web and mobile apps are only for those diagnosed with a condition (and not healthcare providers).
National Multiple Sclerosis Society
The National Multiple Sclerosis Society believes people affected by MS can live their best lives as we stop MS in its tracks, restore what has been lost and end MS forever. The Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward.
Patient Education Genius
Patient Education Genius gives clinicians one access point for the world’s best evidence-based patient education resources. Combining an ever-expanding library of over 50,000 titles with simple digital delivery tools and never-before-documented insight into clinician and patient behavior, the Patient Education Genius is designed to facilitate shared decision-making at the point of care.
PatientsLikeMe is a free, online patient network where people can connect with others who have the same condition, and track and share their own experiences. When members share information on PatientsLikeMe, they generate data about the real-world nature of disease that helps industry partners develop more effective products, services and care.
Pediatric Environmental Health Specialty Units
The Pediatric Environmental Health Specialty Units (PEHSUs) are a source of medical information and advice on environmental conditions that influence reproductive and children’s health. PEHSUs are academically based, typically at university medical centers, and are located across the United States and Canada.
Preventive Cardiovascular Nurses Association (PCNA)
Preventive Cardiovascular Nurses Association (PCNA) is the leading nursing organization dedicated to preventing cardiovascular disease (CVD) through assessing risk, facilitating lifestyle changes, and guiding individuals to achieve treatment goals. This is accomplished through the integration of public and professional education and advocacy. The current state of healthcare demands that nurses play a leading role in identifying and implementing cardiovascular risk reduction strategies. PCNA is committed to educating and supporting nurses so that they may successfully rise to this challenge.
Postpartum Support International
Postpartum Support International provides direct peer support to families, trains professionals, and provides a bridge between them. Services for parents include the HelpLine, peer mentors, online support groups, Provider Directory, and local and specialized Support Coordinators to help parents find care. Services for professionals include trainings and certification, annual conference, awareness materials, membership, perinatal psychiatric ConsultLine for medical providers, and educational resources.
Society for Birth Defects and Research Prevention
The Society for Birth Defects Research and Prevention (BDRP) was established in 1960 as the Teratology Society. Today, this international multidisciplinary scientific society consists of approximately 700 members specializing in a variety of laboratory and clinical disciplines, including developmental and reproductive biology and toxicology, epidemiology, cell and molecular biology, nutrition, genetics, maternal-fetal medicine, pediatrics, obstetrics, medical genetics, and pregnancy risk counseling.
Society for Maternal-Fetal Medicine
The Society for Maternal-Fetal Medicine (SMFM) is a non-profit, membership organization based in Washington, DC. With more than 3,500 physicians, scientists and health professionals around the world, the Society supports the clinical practice of maternal-fetal medicine by providing education, promoting research and engaging in advocacy to optimize the health of high-risk people who are pregnant and/or breastfeeding and their babies. SMFM hosts an annual scientific meeting in which new ideas and research related to high-risk pregnancies are unveiled and discussed.
Spondylitis Association of America (SAA)
The Spondylitis Association of America (SAA) is the leading US nonprofit organization 100% dedicated to improving the lives of people living with all forms of spondyloarthritis. Visit us for trusted and physician vetted information on spondyloarthritis, for support resources and programs, and to connect with others living with these conditions.
The Mighty publishes real stories by real people facing real challenges. Having a chronic illness while pregnant doesn’t have to be isolating – that’s why The Mighty exists. Check out their stories about chronic illness, pregnancy, and mental illness.